Wishing you peace and laughter throughout this journey. Our thoughts are always with you.

Hi, I just got to read your little Joey's story-some parts so familiar to us with our son Connor...his tumor was also N-Myc Amplified, we were shocked when we heard exactly how rare this is of OMS nb tumors. I was wondering if it is okay if I add Joey in my link section on our blog? It is important to me to have these links since when Connor was dx I counldn't find any similiar OMS families. Just let me know, and many prayers for Joey and your family! Love, Debbie (mom to Connor dx OMS & NB 9/07 at 17 months) www.iwillliftmyeyesconnorkhoury.blogspot.com

Our blessing and prayers to you always. We pray for Joey always, that he may have a normal, happy and healthy life!! Aunt Kim

Hi Renee- I am so saddened by what you and your family have had to go through. God has many strange paths to lead us where he wants us to be. We are thinking and praying for you and Joey!

My friend Debi sent your page to me...what a beautiful little boy. I will add your family to my prayer list. God Is With Us!