Debbie Khoury said: November 8, 2009 10:56 am PST
Hi,
I just got to read your little Joey's story-some parts so familiar to us with our son Connor...his tumor was also N-Myc Amplified, we were shocked when we heard exactly how rare this is of OMS nb tumors. I was wondering if it is okay if I add Joey in my link section on our blog? It is important to me to have these links since when Connor was dx I counldn't find any similiar OMS families. Just let me know, and many prayers for Joey and your family!
Love,
Debbie (mom to Connor dx OMS & NB 9/07 at 17 months)
www.iwillliftmyeyesconnorkhoury.blogspot.com